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Spinal Muscular Atrophy Association of Australia Inc.

We are dedicated to providing support to those suffering from all types of SMA along with their families!

The Spinal Muscular Atrophy Association of Australia Inc. and the SMA Australia website have been set up for a variety of reasons. We aim to promote awareness of SMA to the general public, professional services and support networks. We also will provide ongoing support and information to families and sufferers of Spinal Muscular Atrophy.

SMA Australia also aims to provide financial support for special equipment and to establish an equipment pool so that no one may go without the tools they need to fight Spinal Muscular Atrophy. We aim to futher provide some financial support during times of hardship incurred by the disease.

Finally, we want to help promote and fund care options, possible treatments and research so that future generations won’t have to suffer from Spinal Muscular Atrophy in its current capacity.

Mission Statement

Our mission is to proactively care, support and provide for all SMA communities. To care for those directly and indirectly affected by SMA, i.e; sufferers and their families and medical carers. To provide services to fill a need caused by SMA, and to support the mental, physical and emotional well-being of those affected by SMA.

Our vision is for our community to be aware of SMA and supportive of those individuals and their families. We aim to be the first point of contact as well as the authority on support for the SMA community.

Values

Spinal Muscular Atrophy is a rare inherited genetic disease that is characterised by a loss of nerve cells called motor neurons. The loss of motor neurons leads to the progressive muscle weakness and wasting. These muscles are necessary for crawling, walking, sitting, feeding, swallowing and breathing. SMA Australia advocates, provides proactive support, educates public and professionals and anyone touched by this disease. Provision of specialist equipment assists families that is not provided by hospitals. We are currently funding SMA specific research through a group in Western Australia. SMA receives no government funding and solely secures its funding though fundraising efforts.