SMA Committee of Management 2011/12
MR. RUSSELL PERRY
Russell works for local government in Melbourne and has been involved with SMA Australia since 2008 when he heard about Julie’s story on the radio. He is a jack-of-all-trades having been a speech writer, musician, barman and a Police Officer in the Northern Territory Police Force. Russell has always enjoyed volunteering with organisations such as Vision Australia, United Way Geelong and most recently SMA. For the past two years, Russell has been the MC at the annual charity gala for the past 4 years. This is Russell’s third year on the committee and second as president.
Ms. KAYLA MORGAN
Kayla has been involved with SMA Australia since July 2011. She is inspired to bring awareness about SMA into the general public as well as hospital workers and government officials who generaly have no knowledge of the diease. Kayla looks forward to leading the 2011/1 committee by example, actively campaigning and fundraising for SMA. She is not afraid to get her hands a little dirty, especially when the payoff is potentially enlightening someone new about SMA.
MRS. DEBBIE MILLS
Debbie has worked in office administration for the past 16 years in local government. As Julie’s sister, Debbie has seen, lived and breathed SMA from beginning to end understanding the financial contribution required to care for these individuals. Debbie is passionate about continuing to spread the awareness for SMA as well as advocating for and assisting all individuals with SMA, regardless of the severity of the disease. Debbie has been the secretary and a member of SMA since 2007.
MRS. ANNETTE CINI
Annette first learned about SMA when her first granddaughter was diagnosed with the disease. Annette knows firsthand the permeating effects that SMA has on the entire family as she watched her daughter, Julie; lose both of her daughters to the disease. Using her background in childcare, Annette is eager to see SMA Australia continues to grow, spreading awareness of the charity’s available resources and the knowledge of SMA. Annette has been a member of SMA since 2007, and now has the treasurer’s role.
MS. JULIE CINI
Awareness for SMA and SMA Australia is very close to Julie’s heart because she lost both of her daughters to this disease. Drawing from her training in disability and in community services as well as her intimate experience with the effects of SMA, Julie’s priority is to the current and future families affected by SMA. As the public officer, Julie will continue to pedal her tragic, yet inspirational SMA story all across Australia. She hopes to prove that knowledge and awareness is supremacy empowering the families affected by SMA. This is Julie’s sixth year as a member and on the committee.
MRS. DAPHNE BAKER
Daphne became particularly attached to Julie’s second daughter with SMA, Zarlee, and has since been inspired to join the fight for the Australian SMA community. Daphne is completely devoted to her family and now looks to share her energy helping the SMA families. She is eager to actively raise the funds the enable SMA to continue providing for the families with SMA. Daphne has been a member since 2007 and this is her third year on the committee.
MS. SHARON WOOD
GNERAL COMMITTEE MEMBER