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Julie became SMA Australia’s first CEO in late 2008. From 2005 until late 2008, Julie was the secretary/president of the association, managing Spinal Muscular Atrophy Association of Australia out of her own home. Julie founded the charity in 2005 and has since completely devoted herself to SMA Australia and Spinal Muscular Atrophy Association of Australia after her first of two daughters was diagnosed with the disease. Drawing from her training in disability and community services as well as her intimate experience with the effects of Spinal Muscular Atrophy Association of Australia, Julie wishes to provide an organisation for other affected families, offering support and answers any questions. As CEO, Julie is eager to expand SMA’s Australian presence with the help of her staff and devoted committee members.
Download Her BIO: JULIE CINI BIO
Jo Harlow brings a wealth of administration knowledge to the association and aptly co-ordinates the SMA Australia office. Living with an illness herself she can empathise with others and is happy to help you with any queries you may have. Jo also brings previous experience in working for the not-for-profit sector. She is married and has three teenage boys.
Michelle has been working for SMA Australia since November 2012, before the birth of her third child in March 2013. She has come back to work with her young son to still assist us with everything administration in the office. She has just added another ‘hat’ to her many talents, and that will be Client liaision officer, and will be responsible for talking with our many members about their needs and how Spinal Muscular Atrophy Association of Australia can help. Her background is in administration. She has 3 young children, and is a welcomed member of the team.