SMA Australia has a diverse role in the support of the SMA community
EDUCATION & ADVOCATING FOR
- Newly diagnosed families
- Extended family and friends
- The general public
- Healthcare professionals
We have a number of initiatives, programs and project in areas of support. These include
PROJECTS & PROGRAMS
- Equipment Program
- Cough Assist Program
- SMAART Minds IPad Program
- Research Project
- SMA Patient Registry
- Toy Library
- State Resources
SUPPORT
- One on one family support (in home and phone)
- Up to date information in treatment for SMA
- Referrals to counsellors & genetic counsellors
- Standards of care for the treatment of SMA (TREAT NMD)
We have comprehensive information booklets and brochures for distribution to the SMA community. We are also more than happy help educate others in the community. Please don’t hesitate to contact the office on (03) 9545 3633 for further information.