Super exciting news that the PBS listings of Evrysdi and Zolgensma have been expanded to include adults (Evrysdi), pre-symptomatic babies with 1 and 2 copies of the SMN2 gene (Evrysdi) and pre-symptomatic babies with 3 copies of the SMN2 gene (Zolgensma).
Please see our letter attached here.
Join a powerful community of supporters who are helping tackle spinal muscular atrophy at its very core. Our community relies on us for support and best-practice resources to guide them in living well with SMA, as well as for resources to help raise disease awareness, educate others and advocate for people living with SMA in the wider Australian community.