Our Impact

For over 20 years, SMA Australia has been Australia’s peak body for spinal muscular atrophy. In this time, we have evolved from a peer-to-peer support service to national advocates for people living with SMA. In this time, we have achieved a lot for our SMA community. 

  • We have hosted three events at Parliament House in Canberra to put the issues of our community on the radar of influential decision makers.
  • We have campaigned relentlessly for access to the latest treatments for everyone in our community, resulting in the listing of three medicines on the Pharmaceutical Benefits Scheme (PBS).
  • We applied to MSAC (Medical Services Advisory Committee) for SMA to be included in Newborn Bloodspot Screening (NBS), resulting in a recommendation from the Federal government in 2021 that has since been implemented nationally.
  • We have developed a suite of best-practice resources for our SMA community in Australia, which help people who are new to their SMA journey access specialists, treatments and peer support.
  • We have hosted fundraising initiatives to raise money for SMA research and support.

How We’ve Helped

How We’ve Helped

SMA Australia supports our community in a variety of ways:

  1. Item 1
  2. Item 2
  3. Item 3
Button
  1. Hosting community events to bring together people living with SMA, their families and friends.
  2. Ensuring our community has the latest information on treatments, care and research into SMA.

‍

  1. Advocating for our community with key stakeholders, including members of Federal Parliament and Government.
  2. Providing access to necessary equipment through our resource library, purchased through fundraising.

‍

SMA Australia supports our community in a variety of ways:

News & Upcoming Events

news-flash
November 1, 2024
NEWSFLASH! Evrysdi PBS Listing Expansion – 3 copies SMN2

Read more
All
expansion-victoria
March 21, 2024
NEWSFLASH! NBS Expansion to Victoria

Read more
All
spiranza
March 1, 2024
NEWSFLASH! Spinraza PBS Listing Expansion

Read more
All

Support Us Today

Join a powerful community of supporters who are helping tackle spinal muscular atrophy at its very core. Our community relies on us for support and best-practice resources to guide them in living well with SMA, as well as for resources to help raise disease awareness, educate others and advocate for people living with SMA in the wider Australian community.

Make a donation