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Super exciting news that the PBS listings of Evrysdi and Zolgensma have been expanded to include adults (Evrysdi)
We are excited to bring you the news that the PBAC..
21 April 2023 marks another landmark day for the adult SMA community in Australia,
This presentation discussed the topic of intensive therapy relating to children with a diagnosis of Spinal Muscular Atrophy (SMA).
We are thrilled and excited to share this announcement with the SMA community.
This presentation details Daniel’s journey to the Tokyo 2020 Paralympic Games, all his highs and lows, his games, travel, accommodation....
Join a powerful community of supporters who are helping tackle spinal muscular atrophy at its very core. Our community relies on us for support and best-practice resources to guide them in living well with SMA, as well as for resources to help raise disease awareness, educate others and advocate for people living with SMA in the wider Australian community.
