We are thrilled and excited to share this announcement with the SMA community, with Spinraza, being given a positive recommendation for adults living with SMA.
Please see our letter attached here.
This is the first treatment approved for those over 18 living with SMA, and we urge you to get in contact with a neurologist to start the conversation about accessing treatment.
Join a powerful community of supporters who are helping tackle spinal muscular atrophy at its very core. Our community relies on us for support and best-practice resources to guide them in living well with SMA, as well as for resources to help raise disease awareness, educate others and advocate for people living with SMA in the wider Australian community.